On May 23, 2016 Dylan Jeffrey Keithley was born! Our miracle man has arrived! It has taken me 8 weeks to write this blog post because I have been in baby bliss!! Things have gone better than we ever hoped or imagined. He is a really, really good baby and we love being a family of five.
I started this blog to keep family and friends updated and I wanted to share our journey. There is very little information out there about being diagnosed with a cystic hygroma in the third trimester. I hope this blog finds another family who may be going through the same and gives them HOPE! Being diagnosed with a cystic hygroma does not always mean there is a chromosome abnormality. We were told an 85% chance of trisomy 18, 13 or 21. That was wrong! We were told there was a chance Dylan would not breathe or eat or his own. Dylan defied those odds and is thriving! Have faith, have hope!!!
The morning of Dylan’s birth was a whirlwind! Up until the moment he was born it did not go as planned! It was a very difficult morning but the moment he took his first breath everything turned around. When we first arrived at the hospital we were told we on the schedule for the next day which was of course was wrong, then they were running hours behind schedule. The anesthesiologist was not on the same page as the other doctors, the resident administering my epidural missed twice, there was a few minutes were they could not find Dylan’s heartbeat. Everything leading up to his birth was very, very stressful and difficult!
I finally made it into the operating room and it felt like I was in there forever! In reality I think it was probably about 20 minutes before I could feel a lot of tugging and pulling then I heard a gurgle and I knew he was out. A few seconds later I heard him cry. The most glorious, beautiful, wonderful cry! The doctor held him up for about one second but I could see he was ok! The rest of the morning went by quick. I was taken into recovery and was a little out of it. Jacob came in and was able to show me pictures and video of Dylan. He was doing really, really well!! The lymphatic malformation was much smaller than we had anticipated – you can hardly even see it. He was breathing well on his own and was being monitored in NICU.
Our family was able to go in and see him one at a time. I was taken to my room to rest and doing well since I knew Dylan was ok. Around 5pm the nurse and Jacob came in to tell me that they were taking Dylan down for an MRI and asked me if I wanted to go see him first. Of course I did! Then the nurse said I had to get out of bed and get into a wheel chair to go see him. Umm, I just had my c-section 6 hours earlier and you want me to get out of bed?! I knew I would have to do it. It was a struggle but I was able to do it and meet my boy! And that moment was amazing. Holding my sweet boy in my arms was just the best! I got to hold him and cuddle him for about an hour before they took him for his MRI. He was gone for a few hours and then we went back to NICU and got to be with him. The doctors had to review the MRI and would get back to us with the results soon.
The preliminary results were good and surgery was not immediately needed. The nurses were able to give Dylan a bottle and he was doing great. After 2 days in NICU Dylan was released and we got to have him in our room while I recovered. The ENT team came and spoke to us and said that the lymphatic malformation was not effecting his eating or breathing and he could go home with us. This was amazing, amazing news!!! Everything was turning out better than we ever could have imagined!
After 4 days in the hospital we were able to go home. Dylan is very much a ‘normal’ newborn. I look at him and I am just in awe. I think of everything the doctors told us and I know our son is miracle -the ultrasound tech telling me something was wrong, the doctor giving us an 85% chance of a chromosome abnormality, all the tests, MRI’s. And Dylan is just perfect!! He does have the lymphatic malformation but you can hardly even notice it. It is a small bump below his right ear. We will see the ENT specialist next week and go from there.
Everything has gone so much than we ever expected!! Our boy is amazing and we are enjoying every second. THANK YOU FOR ALL THE PRAYERS & SUPPORT!